Baiba Ziemele

Baiba Ziemele
Board member of World Federation of Hemophilia, President of Latvian Alliance of Rare Diseases

By passionately learning and gaining experience, from an ordinary patient became a patient advocate in Latvia and internationally. She addresses various issues related to healthcare and access to medicines for people with bleeding disorders (hemophilia, von Willebrand disease, rare coagulation factor deficiencies), people with rare diseases and patients in general. Developed policy on rare diseases in Latvia and Europe as RARE2030 expert, raises awareness of von Willebrand disease on behalf of European Haemophilia Consortium and World Federation of Hemophilia, invites to pay more attention to diagnosis and treatment of women with bleeding disorders worldwide. Leads Latvia Hemophilia Society, Latvian Alliance of Rare Diseases and builds a network of Patient organizations in Latvia.